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- Talk
- 15/09/2021
- Canada
An Integrative Review on Functional Recovery and Patient Experience in People Suffering From Soft-Tissue Sarcoma
Description
This presentation by Mohammad Hassani focuses on a study assessing the quality of life of patients with extremity soft tissue sarcoma. The study highlights advancements in survival rates due to improved care and shifts in evaluation from caregiver assessments to patient-reported outcomes. A review of existing literature identified that there are currently no specific patient-reported outcome (PRO) measures for soft tissue sarcoma, which emphasizes the necessity for more tailored assessments.
The study evaluated articles from 2015 to 2019 and included data from 683 patients, detailing that the mean age of participants was 57 with no significant gender preference. Different PRO measures utilized in previous studies were found to be flawed, reinforcing the need for improvement in how quality of life is measured in this patient population.
Key findings of the study revealed that up to 45% of patients experience distress, particularly among older and female patients. The presentation discusses common sources of distress, the importance of information sharing, and the challenges of emotional recovery compared to physical recovery. Psychological support was noted as critical for coping, alongside the recognition of significant physical symptoms such as pain.
The conclusion points out the deficiencies in current PRO measures, including the need for specificity, as current measures do not adequately differentiate between disease-related impacts and other factors affecting quality of life. Ultimately, the presentation calls for comprehensive approaches to patient care that address both physical and emotional needs.