COF Award Recipient Research Talk 1: Development of LIMB-Q Kids: A New Patient-Reported Outcome Measure for Children with Lower Limb Differences

Description

The presentation introduces Dr. Anthony Cooper, a specialist in pediatric orthopedics, who is discussing his research on limb differences in children. Dr. Cooper leads the Division of Pediatric Orthopedics at the University of British Columbia (UBC) and has developed a patient-reported outcome measure designed specifically for this demographic. He emphasizes the importance of understanding how limb differences affect the quality of life of affected children and highlights the transition in terminology from "deformities" to "differences" based on patient feedback.



Dr. Cooper's research is facilitated by community donations and grants, which have allowed him to establish an international network of orthopedic surgeons and researchers aimed at improving health-related quality of life for children with limb differences. During the presentation, he outlines various aspects of the limb differences, discusses treatment options, and contrasts surgical and non-surgical approaches. He conducts a systematic review indicating a gap in validated patient-reported outcomes and efforts to adapt measures globally, including extensive qualitative interviews across different cultures.



The presentation also highlights the various stages of developing a valid and comprehensive patient-reported outcome measure that encompasses physical, psychological, and social health. This measure is aimed not only at children in developed countries but is also designed to be relevant across diverse global contexts. Dr. Cooper concludes by underscoring the need for this tool in clinical practice to enhance treatment outcomes, gratitude for the funding received, and the positive impact of collaborative work in this field.

Specialties