Description
In this presentation, Andrew Price discusses the evolution and significance of Patient Reported Outcome Measures (PROMs) within the context of joint replacements and their interaction with the National Joint Registry (NJR). He emphasizes the importance of PROMs in understanding what constitutes a successful treatment outcome, arguing that relying solely on revision rates overlooks critical patient experiences, such as ongoing pain and dissatisfaction.
He clarifies that while the NJR has a long-standing relationship with PROMs data collection, it does not directly collect PROMs; rather, these are gathered by NHS Digital. Price outlines the historical context that led to the establishment of mandatory PROM collection, initiated by the Darzi report in 2008 and reiterated in the Cumberlege report, which calls for direct patient feedback regarding treatment success.
Price outlines the existing challenges in the collection and integration of PROMs into clinical practice, highlighting the disconnect between the data collection process and the clinical care provided to patients. Currently, patients receive questionnaires with minimal follow-up support, leading to frustrations as poor outcomes remain unaddressed. He urges for a more integrated approach where PROMs data is proactively used to inform clinical decisions and improve outcomes, advocating for mandatory inclusion of PROMs in clinical pathways while addressing consent and feedback mechanisms. Ultimately, Price stresses the need for reform to enhance patient safety and treatment efficacy, concluding with a call for further improvements in the PROMs framework.