Development Of A Family-centred Core Outcome Set For Infants With Developmental Dysplasia Of The Hip Treated With A Brace

Description

In this episode of AI Talks with Bone & Joint, hosts Simon and Amy explore a vital research protocol focused on creating a family-centered core outcome set for infants with developmental dysplasia of the hip (DDH) undergoing brace treatment. Published in January 2025 by J. Craven, O. O'Malley, and D. C. Perry, the research addresses the often-overlooked impact of brace treatment on families. DDH, which affects about 1% of children, can lead to serious long-term issues if untreated, making the understanding of nonoperative treatments critical. This research seeks to incorporate both clinical and family experience perspectives to enhance treatment effectiveness and satisfaction. The methodology involves a comprehensive literature review, stakeholder surveys, and a two-stage modified Delphi process to ensure a thorough collection of opinions and a consensus on important outcomes. The discussion highlights the innovative nature of this study, emphasizing the importance of family voices in clinical decision-making and the potential for improved care practices in pediatric orthopaedics. The episode concludes with a call to action for further inclusive research in the field.

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