Please login to view this media
- Talk
- 15/09/2021
- Canada
Sarcoma Patient Willingness To Participate in Cancer Surveillance Research: A Cross-Sectional Patient Survey
Description
In this presentation, Michelle Ghert introduces a study regarding the willingness of sarcoma patients to participate in cancer surveillance research. The study aims to address the low long-term survival rates associated with lung metastases in soft-tissue sarcoma, emphasizing the need for effective post-operative cancer surveillance regimens. Ghert explains the context of the research, detailing a modified Delphi study that prioritized surveillance intensity as a key question in orthopedic oncology.
The randomized controlled trial being discussed will assess different surveillance regimens for sarcoma patients post-extremity tumor surgery. Ghert outlines the methodology, involving a cross-sectional survey of soft-tissue sarcoma patients across multiple clinical sites, collecting data through a meticulously developed questionnaire.
The findings highlight participants' demographics, education levels, and burdens related to cancer care. A significant majority, 90%, expressed willingness to engage in cancer-related research, with 85% indicating readiness to participate in the safety trial. The motivations behind such willingness include contributing to scientific discovery and aiding future patients, along with a strong trust in their healthcare providers. In contrast, some potential participants expressed reluctance due to feelings of overwhelm from their cancer experiences.
Ghert concludes by acknowledging both the strengths and limitations of the study, affirming that the findings will inform patient-centered trial protocols for sarcoma surveillance. The presentation ends with insights into the ongoing progress of the safety trial and an invitation for further updates in future meetings.